Wednesday, September 06, 2006

Eighteen

When I had phoned her to set up a meeting I told her she could bring the father of the baby or any other support person she wanted. She had told me "The only support I need is the man upstairs," referring, I think, to God and not the upstairs tenant.

She was 36 weeks pregnant, carrying a baby with Trisomy 18, diagnosed by chromosome analysis of amniotic fluid. Her midwife had asked me to speak with her. The midwife said mom didn't believe the diagnosis. She claimed that in a previous pregnancy they told her the baby had Down syndrome and he had turned out fine, with no chromosome problem.

I began our conversation by trying to find out what mom knew, to see what her understanding was. She talked as if she had some denial of the problem, but as we talked further I could tell she really was understanding. I told her the bad news about kids with trisomy 18, that they have multiple birth defects, that 90% die by age one year, that the survivors are severely developmentally disabled. I told her that many people think it okay to not do heroic treatment with these kids, but to let nature take its course, allowing them to die.

Mom was very nice, but she wasn't ready to give up on her child. She wants the baby resuscitated, to see her in the flesh, to see the evidence, I guess, of the Trisomy 18. She said it would then be in God's hands, but let me know she might be open to letting nature take its course.

What a horrible situation for a mother to be in. At a time when she should be thrilled with the impending birth of a child, when she can feel it kicking, living inside her, she has to come to grips with the fact that this is far from a healthy baby, that there will be far from the joy she would have, should have, with a normal baby. Instead of reading brochures about parenting or cribs, she has to read information I gave her about the bad things her child has and support groups to help her cope. Once again, I am thankful for my own healthy children. Once again, I am amazed at the hard, hard things people encounter in life. She'll be on my mind the next few weeks.

35 Comments:

Anonymous Anonymous said...

I admire that mother's strength.

12:48 PM  
Blogger Flea said...

Good for her. Now excuse me while I duck under my computer table before the "who's gonna pay for it?" crowd starts whaling on me.

best,

Flea

8:07 PM  
Anonymous Anonymous said...

Hehehe....YOU pay for it. That huge chunk that the feds deduct from your salary every month go towards 'nurturing' such kids. I really wonder what her response would be if we told her that she will have to pay half of the costs incurred. I am sure her position would change rather drastically.
On the other hand, we have some bloggers (the pro-life activists) who probably would be more than glad to take care of this child ;))
I do agree though that this is a devastating time for the mother, who probably has limited intelligence and resources.

8:36 PM  
Anonymous Anonymous said...

How well I remember my patient, the nurse who was carrying a trisomy 18 baby. She too was not ready to give up on her baby and believed that faith would result in a cure. She wanted "everything done" for her baby, so I gratefully sent her off to the tertiary care center for the birth. She called me in tears a week later. Her baby was dead. The tertiary care center L&D was extremely busy. Despite my several conversations with the attendings, and despite her ability as a nurse to let her feelings be known, her trisomy 18 baby was born unattended and there were no resuscitative attempts. She was devastated. I sent her back to the tertiary care center attending for another visit, just to talk, but more than an hour of talk later she was still unable to believe that her baby would have died even if the intern had been present for the birth, even if the pediatricians had tried to resuscitate the baby. What went wrong? How well I understand the triage necessary on a very busy L&D--you have to help the babies who are going to live. And this woman's expectations may have been unreasonable. So I hope your patient gets what she expects when her baby is born, and I hope she doesn't expect too much.

9:04 PM  
Anonymous Anonymous said...

A tough situation indeed for a mother to be in at any age.

Interesting comments.

10:17 PM  
Anonymous Kelley said...

Couldn't imagine going through that one. The child's life is important, nonetheless, as I'm sure many will gain in some way or another, whether he/she lives 2 minutes or 2 years. I'm just glad she has you for the doc. I'm also wondering why some of the doctors posting comments get so bent out of shape over costs. Were costs, politics, or the like, any part of that oath you guys take?? Wondering what made some of you so callous. And no, not wanting to argue or debate, it's a sincere question.

11:41 PM  
Anonymous Anonymous said...

I just hope that the baby doesn't feel pain for "2 minutes or 2 years". Yes, it's a sad and difficult situation for the mother. Apparently in her opinion, giving birth to the child allows her to feel that it's in the hands of a higher power (absolving her from the guilt of having opted to terminate). I personally don't think this course is a very kind or pain-free proposition for the baby, though. If I were her, I'd feel a whole lot worse by allowing my baby to suffer for minutes, hours, or longer than to have let him go earlier on. It's a lose-lose situation.

11:54 PM  
Anonymous Another Mom said...

I wrote about my own decision-making process for terminating my trisomy 18 baby in the comments section of your "Decision" post awhile back: https://beta.blogger.com/comment.g?blogID=21715508&postID=115497187961361909

Rather than rehash why I feel ending a pregnancy is an ethical and merciful option in the case of T18, I'll just say that the reasons I outlined in that comment remain the same ...

Of course, if I found out my daughter had T18 in the third trimester, then termination would not be an option. So in this case I would have chosen comfort care and gone the "DNR" route.

My reasons have nothing to do with monetary costs of care and everything to do with what the care costs the child. Extra pain from treatments & procedures, limited physical contact with parents due to tubes and wires, and even just the unrelenting harsh noise of the NICU are miseries that I don't think a terminally ill infant should be forced to endure. We put kids through those things if there is a chance that they will be able to move on to something better -- even just marginally better -- in terms of quality of life. But the tragic reality is that T18 babies who receive every medical treatment available tend NOT see a large increase in length of life. And the quality of life is much worse than they would have with no extreme measures.

My heart goes out to this poor woman. I know the agony that she's in firsthand (unlike the sea of "anonymi" out here cavalierly making jokes about her situation). And I certainly understand how she's come to this decision. But, let's not call her "strong" for doing this. I don't see much that's strong or heroic about what is going to happen to the baby if she goes the no-holds-barred route for care after the birth.

1:28 AM  
Anonymous MyssiAnn said...

My heart goes out to her. My own religious beliefs would never allow me to terminate a pregnancy and I would have to trust God's judgement on the subject as well. One never knows some things until one can see them for oneself. And sometimes, God brings us the hard things to help us in ways we can't imagine. (Thanks, JW, for teaching me that.)

2:13 PM  
Blogger Judy said...

A small percentage of Trisomy 18 babies have a T18 mosaicism. Those babies may have few or none of the typical anomalies associated with Trisomy 18 and their prognosis is a total mystery as it depends entirely on the percentage of the mosaicism.

Although I work in a hospital with a reputation for resuscitating all but the most hopess - and then generally only with the consent of the parents -- a mom came to us once with just such a baby. She knew of the T18 mosaicism, but came to us as a "no prenatal care" rather than admit that. She was afraid that she'd be treated as was anonymous 9:04's patient.

We would not have done that, but she wasn't taking any chances. She wanted us to promise her a long and happy life for that baby. We can't. He did leave us nipple feeding (VERY unusual for a T18 kid) and otherwise acting more or less normal. He didn't have any of the cardiac anomalies that are so typical either.

I wish she had stayed in touch. I'd love to know what happens to him.

The "who's going to pay for it" folks need to look at some of the other ways our society pours money down rat holes before they lament spending money on a child. Any child.

11:15 PM  
Anonymous Anonymous said...

Again, if you are not in the medical profession, it is easy to mouth platitudes. We would love to spend money on resuscitating/sustaining a trisomy 18 rather than spend millions of dollars looking for a liver for a alcohic scumbag with cirrhosis. But the fact of the matter is that the funding for Pediatrics is limited. We have to make do with what little we have. Money spent on kids like these is taken away from educational/medical programs necessary for kids who have a chance at life. If in some way, the pediatric population would have a say in the elections, this would rapidly change!

12:04 AM  
Blogger Becca said...

I won't ask you to define 'a life' but do remember that if the 1-year survival rate for full T18 is as high as 10% currently - and may well rise with future medical advances - then the medical support of a T18 baby is hardly futile care. The oldest documented current survivor that I could find is a woman of 24 (last year so presumably now 25 unless she's died in the meantime). Neonatal death in T13 and T18 is probable, yes, but not inevitable.

1:23 PM  
Blogger Judy said...

anonymous,
Flea is a pediatrician and I'm a NICU nurse. We're on the front lines. We learn things from every baby we care for - whether that child lives for a day or 80 years.

Sometimes what we learn costs more than it seems to be worth at the time and it is appropriate to set limits - but the limits should err in favor of life.

With this T18 mosaic infant, for example, our docs advised the mother that they felt it would be inappropriate to perform a tracheostomy or place a G-tube for feedings. Both proved quite unnecessary in any case. None of us is sorry that the baby was placed on life support initially.

2:17 PM  
Blogger neonataldoc said...

Thanks for the comments. I don't have much to add. I'm not convinced that spending money on a Trisomy 18 child directly affects spending on other children's/pediatric programs.

7:44 PM  
Blogger Becca said...

I've just wandered over to and had a browse around on the SOFT website and found a few nice pictures. Dunno what trisomy these 2 young ladies have but it sure looks like they're having fun.

7:13 AM  
Anonymous Anonymous said...

I guess it all depends upon what one's definition of "fun" is. Frankly, I got tears in my eyes when I looked at the photo of the two girls. If someone wasn't holding one girl up to the other in the wheelchair, they probably wouldn't even realize there was another child there. Sweet, poor kids.

6:33 PM  
Blogger nrm00521 said...

关爱生命,关注糖尿病,为糖尿病患者带来福音!


反应釜
搪瓷反应釜
搪瓷
生物柴油
造粒机
造粒
搜索引擎优化
搜索引擎优化
糖尿病
鲜花
游戏币
非淋菌性尿道炎
疱疹
美甲
网站优化
买金币
魔兽金币
疤痕
游戏币
买金币
魔兽金币
室内设计
癫痫
液晶电视
等离子电视
网络电话
癌症
肿瘤
食道癌
肝癌
胃癌
肺癌
脑瘤
乳腺癌
直肠癌
恶性淋巴瘤
淋巴癌
食道癌的治疗
肝癌治疗
肺癌治疗
胃癌治疗
乳腺癌的治疗
癌症治疗
肝硬化腹水
肝腹水
肝硬化

10:30 AM  
Blogger googleseo said...

加气混凝土设备
加气混凝土设备
疤痕
糖尿病
搜索引擎优化
游戏币
买金币
魔兽金币
魔兽金币
游戏币
买金币
食道癌
食管癌
食道癌的治疗
食管癌的治疗
贲门癌
贲门癌的治疗
食道癌的治疗
癌症
肿瘤
食道癌
肝癌
胃癌
肺癌
脑瘤
乳腺癌
直肠癌
淋巴癌
鼻咽癌
乳腺癌
胃癌
肝癌
土工格栅
碳纤维
输送设备
输送设备
非淋菌性尿道炎
疱疹
鄂式破碎机
免烧砖机
烘干机
碎石机
球磨机
耐火材料
煤气发生炉
雷蒙磨
雷蒙磨
球磨机
选矿设备
牛皮癣
银屑病
牛皮癣
银屑病
球磨机
碎石机
免烧砖机
食道癌
膀胱癌
肺癌
桥式起重机
桥式起重机
起重机
起重机
天车
电动葫芦
室内设计
癫痫
鲜花
旅游策划
旅游规划
旅游规划
旅游开发
旅游规划
旅游规划
造粒
反应釜
反应釜
造粒机
肝硬化腹水
肝腹水
肝硬化
瘦脸
抽脂
除皱
变性
丰胸
整形美容
整形美容
网络电话
液晶电视
等离子电视
食道癌
食道癌
食管癌
贲门癌
糖尿病
癫痫病
癫痫
糖尿病

11:30 AM  
Blogger googleseo said...

加气混凝土设备
加气混凝土设备
疤痕
糖尿病
搜索引擎优化
游戏币
买金币
魔兽金币
魔兽金币
游戏币
买金币
食道癌
食管癌
食道癌的治疗
食管癌的治疗
贲门癌
贲门癌的治疗
食道癌的治疗
癌症
肿瘤
食道癌
肝癌
胃癌
肺癌
脑瘤
乳腺癌
直肠癌
淋巴癌
鼻咽癌
乳腺癌
胃癌
肝癌
土工格栅
碳纤维
输送设备
输送设备
非淋菌性尿道炎
疱疹
鄂式破碎机
免烧砖机
烘干机
碎石机
球磨机
耐火材料
煤气发生炉
雷蒙磨
雷蒙磨
球磨机
选矿设备
牛皮癣
银屑病
牛皮癣
银屑病
球磨机
碎石机
免烧砖机
食道癌
膀胱癌
肺癌
桥式起重机
桥式起重机
起重机
起重机
天车
电动葫芦
室内设计
癫痫
鲜花
旅游策划
旅游规划
旅游规划
旅游开发
旅游规划
旅游规划
造粒
反应釜
反应釜
造粒机
肝硬化腹水
肝腹水
肝硬化
瘦脸
抽脂
除皱
变性
丰胸
整形美容
整形美容
网络电话
液晶电视
等离子电视
食道癌
食道癌
食管癌
贲门癌
糖尿病
癫痫病
癫痫
糖尿病

11:30 AM  
Blogger 87526053 said...

杭州企业展示产品有:毛巾毛巾厂压缩毛巾太阳能电池充电电池手机电池不锈钢不锈钢管不锈钢管制品耳机蓝牙耳机无线耳机干燥设备干燥设备厂木材干燥设备脚手架脚手架租赁快装脚手架计量泵隔膜计量泵

杭州婚庆杭州婚庆公司提供杭州婚庆用车杭州商务庆典杭州婚庆摄像杭州婚庆策划吗?

彩票合买网致力彩票合买,足彩合买网上买彩票服务。
冬虫夏草结冷胶
类风湿益赛普
冷干机
搅拌机混合机乳化机
分散机搅拌器
PCR仪
LED
西湖龙井云南普洱茶景德镇陶瓷
湖北程力专用汽车厂生产销售:
洒水车吸粪车垃圾车压缩式垃圾车油罐车吸污车高空作业车随车吊自卸车教练车厢式车专用车配件消防车半挂车冷藏车运水车牵引头清障车洒水车吸粪车垃圾车吸污车油罐车高空作业车随车吊自卸车教练车半挂车消防车专用车配件厢式货车冷藏车运水车牵引车散装水泥车液体车水泥搅拌车清障车等车辆,欢迎选购!

处女膜修补处女膜修复
视频光端机数字光端机接口转换器协议转换器天然气流量积算
光纤收发器
无纸记录仪
流量计算仪盘古MC盘古VX圆图记录仪信号校验仪杭州注册公司流程
杭州注册公司费用如何注册杭州公司
掼蛋
变机测试仪
开关电源老化
磁粉测功机
接地电阻测试仪
锦旗制作
气动隔膜泵在线粘度计
围巾除湿机
吊装带webbing sling

11:59 PM  
Anonymous Anonymous said...

A case report: 2006 TRISOMY 18 in a 50-year-old female - Bhanumathi B, Goyel Neelam A, Mishra ZA - developmentally ...Her speech was limited to simple sentences. Longevity ...could be due to the absence of cardiovascular anomaly. There are always exceptions to bleak rules. I am also a mom to a child with tetrasomy 18p who lived a full healthy life to age 13.

1:03 PM  
Blogger hhpump said...

单级离心泵
中开泵
不锈钢多级泵
氟塑料离心泵
塑料离心泵
管道离心泵
管道离心泵
不锈钢管道泵
油桶泵
磁力驱动泵
齿轮油泵
自吸油泵
电动隔膜泵
立式多级泵
不锈钢离心泵
单螺杆泵
多级管道泵
浓浆泵
化工离心泵
氟塑料离心泵
单级离心泵
卧式离心泵
不锈钢多级泵
卧式多级泵
管道油泵
自吸排污泵

2:31 AM  
Blogger nrm00521 said...

癌症
风湿
风湿病
强直性脊柱炎的治疗
强直性脊柱炎症状
强直性脊柱炎的症状
强直性脊椎炎
类风湿性关节炎
类风湿关节炎
类风湿的治疗
风湿性关节炎
类风湿
强直性脊柱炎
牛皮癣
sitemap
牛皮癣
银屑病
牛皮癣的治疗
银屑病治疗
银屑病患者之家
牛皮癣图片
银屑病图片
如何治疗牛皮癣
牛皮癣症状
银屑病的治疗
牛皮癣
银屑病
加气混凝土
制砂机
球磨机
破碎机
破碎机
球磨机
砌块机
球磨机
雷蒙磨
免烧砖机
制砂机
破碎机
免烧砖机
破碎机
搜索引擎优化
室内设计
kvm
液晶电视
等离子电视
网络电话
香港注册公司
香港注册公司
供热展|采暖展|通风展|地暖展|北京供热展|北京采暖展
sitemap
雷蒙磨
制粉机
磨粉机
雷蒙磨
sitemap
骨髓炎的治疗
骨髓炎
耐火材料
买金币
搜索引擎优化
魔兽金币|游戏币
切换器
电脑切换器
视频分配器
VGA延长器
kvm
切换器
香港注册公司
香港注册公司
免烧砖机
砂石生产线
制砂机
石料生产线
球磨机
选矿设备
香港注册公司
香港注册公司
供热展|采暖展|通风展|地暖展|北京供热展|北京采暖展
sitemap
雷蒙磨
制粉机
磨粉机
雷蒙磨
sitemap
骨髓炎的治疗
骨髓炎
河南整形美容
瘦脸
抽脂
除皱
变性
丰胸
整形美容
整形美容
河南整形美容医院|河南整形美容|河南整形医院
河南整形美容医院|河南整形美容|河南整形医院欢迎光临
癫痫
癫痫
室内设计
粉碎机
输送设备
癌症
糖尿病
搜索引擎优化
搜索引擎优化
输送设备
反应釜
搪瓷反应釜
搪瓷
生物柴油
造粒机
造粒
kvm
切换器
电脑切换器
视频分配器
VGA延长器
香港注册公司
香港注册公司
kvm

10:27 PM  
Blogger nrm00521 said...

供热展
衡器
衡器
工作服
加气混凝土设备
呼叫中心

95015
4007
北京空调公司
北京空调公司
风管清洗
北京风管清洗
回收空调
空调拆装
中央空调清洗
空调清洗
空调移机
游戏交易网
魔兽世界金币
游戏币交易
衡器
电子汽车衡
sitemap
牛皮癣治疗
牛皮癣的治疗
银屑病治疗
银屑病患者之家
牛皮癣图片
银屑病图片
如何治疗牛皮癣
牛皮癣症状
银屑病的治疗
牛皮癣
银屑病
Thermal fogger
ULV Sprayer
Cold fogger
专栏
北京搬家
北京搬家公司
搬运车
液压叉车
粉碎机
起重机
癌症
搜索引擎排名
搜索引擎优化
乳腺癌
糖尿病
胃癌
切换器
kvm
kvm
风湿
强直性脊柱炎
类风湿
类风湿性关节炎
风湿性关节炎
风湿
风湿病
强直性脊柱炎的治疗
强直性脊柱炎症状
强直性脊柱炎的症状
强直性脊椎炎
类风湿性关节炎
类风湿关节炎
类风湿的治疗
强直性脊柱炎

起重机
癌症
糖尿病
胃癌
肝癌
乳腺癌
贲门癌
肿瘤
肺癌
直肠癌
Learn Chinese
Mandarin
Learn Chinese
Mandarin

衡器
电子汽车衡
加气混凝土设备
Thermal fogger
ULV Sprayer
Cold fogger

3:54 AM  
Blogger xie said...

google左侧排名
google排名
鲜花
破碎机
球磨机
选矿设备
雷蒙磨
烘干机
整形
隆鼻
机票
股骨头坏死
打包机
短信群发
翻译公司
数据恢复
数据恢复
google左侧排名
google排名
工控机
机票

磁选机
浮选机
球磨机
破碎机
蟑螂
蟑螂药
老鼠药
床上用品
大屏幕
减肥
专业美容
西装
职业装
礼服
平板电脑
嵌入式触摸屏
人机界面
家教
北京家教
google排名
google左侧排名

干洗
干洗机价格
干洗店加盟
干洗机
干洗设备
干洗加盟
集团电话
木地板翻新
地毯清洗
清洗油烟机
墙面粉刷
石材翻新
电动窗帘
群发短信
短信群发器
短信群发软件
北京办公家具
真空泵
玩具
游乐设备
模型
无线网桥
亚洲交友中心
google左侧排名
google左侧排名
google左侧排名

防雷
废料
玩具认证
鲜花
监控
综合布线
系统集成
北京家教
广告公司
文化传播有限公司
婚庆公司
北京婚庆公司
礼仪庆典公司
北京演出公司
演出公司
公关公司
偶联剂
凌华工控机
Dialogic语音卡
google排名
google左侧排名

2:32 PM  
Anonymous Anonymous said...

东风程力汽车国家发改委定点生产各类专用汽车的专业厂家,国家大型专用汽车制造厂。

国内知名园林绿化石油化工
市政环卫专用汽车制造商。

其主导品种有园林绿化洒水车吸粪车
垃圾车压缩式垃圾车油罐车吸污车高空作业车随车吊自卸车教练车厢式车专用车配件消防车半挂车冷藏车运水车牵引头清障车牵引车散装水泥车化工液体车水泥搅拌车等八大系列100多个品种车型。

提供各类车型产品价格:洒水车价格|吸粪车价格|垃圾车价格|吸污车价格|油罐车价格|高空作业车价格|压缩垃圾车价格|挂桶式垃圾车价格|摆臂式垃圾车价格、地坑式垃圾车价格|自卸车价格|运水车价格|厢式货车价格|消防车价格|冷藏车价格|教练车价格

新浪洒水车百度洒水车汽车博客网汽车和讯网
免费销售咨询电话:0722-3812866 3817866

9:33 PM  
Blogger nrm00521 said...

球磨机
痤疮
球磨机
电动滑板车
无痛人流
子宫肌瘤
肝硬化
肝腹水
肝硬化腹水
肝脾肿大
肝硬化治疗
肝腹水治疗
货架
乙肝
肝癌
肝腹水

帐篷
篷布
肝癌
工作服
类风湿
风湿
对对碰
黄金矿工
连连看
泡泡龙
太极
天车
友情连接
起重机
起重设备
桥式起重机
电动葫芦
防爆电动葫芦
行车
友情连接
起重机
起重设备
强直性脊柱炎
风湿性关节炎
类风性湿关节炎
风湿
类风性
痤疮
起重机
起重机
电动葫芦
起重机
论文代写
牛皮癣
银屑病
磁力泵
计量泵
北京空调公司
空调拆装
空调移机
冲孔网
球磨机
免烧压砖机
制砂机
气体检测仪


强直性脊柱炎
搜索引擎排名
alexa排名
造粒
衡器
癌症
搜索引擎优化
鲜花
肺癌
乳腺癌
胃癌
癌症
起重机
起重机
起重设备
电动葫芦
行车
天车
隔膜泵
婚纱
礼服
旗袍
婚纱批发|外贸婚纱|婚纱厂|婚纱配件
花童装

12:05 PM  
Blogger 黄河水泵 said...

单级离心泵
中开泵
不锈钢多级泵
氟塑料离心泵
塑料离心泵
管道离心泵
管道离心泵
不锈钢管道泵
隔膜泵
油桶泵
磁力驱动泵
齿轮油泵
自吸油泵
电动隔膜泵
立式多级泵
不锈钢离心泵
单螺杆泵
多级管道泵
浓浆泵
化工离心泵
氟塑料离心泵
单级离心泵
卧式离心泵
不锈钢多级泵
卧式多级泵
管道油泵
自吸排污泵
上海水泵厂
磁力泵
电动隔膜泵
潜水泵
电动隔膜泵
导热油泵
插桶泵
管道泵
管道泵
管道泵
导热油泵

螺杆泵
化工泵
水泵
消防泵
屏蔽泵
深井泵
转子泵
潜水泵
标牌制作
锅炉给水泵
消防泵
立式消防泵
转子泵
氟塑料磁力泵
控制柜
液下泵
污水泥浆泵
玻璃钢液下泵
耐腐蚀离心泵
氟塑料合金离心泵

9:16 AM  
Anonymous Anonymous said...

As a mother of a one year old beautiful daughter with partial trisomy 18 along with an 8pter dletion, I thank God for her and encourage all of you who wrote things such as ptuuing a child through pain or talking about the cost to take a long look in the mirror and ask yourself if you like who you are. My daughter is in no pain. She is happy and thiving and to look at her you would never know her situation unless I told you. And as far as the cost, what is your life wirth to you? I pay taxes but I also pay my insurance premiums and have not asked for any handouts regardless of our out of pocket expenses. May God bless you and open your eyes to what being a loving responsible parent is really about. I know our daughter would be most thankful to be seen the way you like to be seen which is a person, imperfect like all of us but no worse than anyone else, in fact, probably better because she is sweet and innocent and untainted by the world. Too bad I can't say that for some of you and your comments.I find some of your words appalling. How dare anyone mention cost or pain when they are not even aware of what they are talking about. walk in our shoes before you pass judgement. Look in my daughters eyes and see her smile at you and reach her arms up to be held before you decide money is an issue or that she is in pain. I assure you as she sleeps soundly in her crib now, she is in the best dream God can give and when she wakes tomorrow she'll be the same sweet girl she is every day.

11:04 PM  
Blogger makun1828 said...

This comment has been removed because it linked to malicious content. Learn more.

9:33 AM  
Blogger wooaini said...

铜米机
碳雕
炭雕
活性炭
活性炭雕
空气净化产品
好想你枣
北京好想你枣
网站建设
网站推广
googel左侧优化
googel左侧推广
搜索引擎优化
仓壁振动器
给料机
分子蒸馏
短程蒸馏
薄膜蒸发器
导热油
真空泵油
胎毛笔
手足印
婴儿纪念品
婴幼儿纪念品
园林机械
草坪机
油锯
小型收割机
收割机
割灌机
割草机
电动喷雾器
地钻
采茶机
飘人|飘人2008|云淡风清
铣刀
意大利留学
留学意大利
钢管舞
钢管舞培训
北京钢管舞
爵士舞
北京音皇国际
泳池设备
桑拿设备
印刷厂
油锯
割草机
绿篱机
风力灭火机
留学意大利
意大利留学
好日子小吃车
好日子烧烤小吃车
好日子多功能小吃车
好日子烧烤车
中频感应熔炼锻造设备
高频感应加热钎焊设备
保护膜
佛具
律师事务所
北京律师事务所
法律咨询
北京律师
北京法律咨询
小吃车
多功能小吃车
烧烤小吃车
烧烤车
拓展训练
水泥艺术围栏
水泥艺术围栏设备
水泥艺术围栏机械
水泥栅栏设备
艺术护栏
艺术栏杆
环保艺术围栏
环保围栏
环保围栏机械
环保围栏设备
彩色艺术围栏
花瓶柱
阳台柱
阳台护栏设备
阳台护栏
北京写字楼
写字楼出租
写字楼租赁
塑料轴承
陶瓷轴承
破碎镐
铣刨机
china tours
china travel
china tour packages
tibet tour
泳池设备
桑拿设备
高低温试验箱
盐雾试验箱
割草机
风力灭火机
绿篱机
输液轨道
输液吊架
轨道输液架
医用吊架
天轨输液吊杆
医用扶手
输液架
设备带
治疗带
中心供氧
博客1
博客2
博客3
博客4
博客5
博客6
博客7
博客8
博客9
博客10
博客11
博客12
博客13
博客14
博客15
博客16
博客0
博客刘
网站建设
网站推广
googel左侧优化
googel左侧推广
搜索引擎优化
铜铝连接管
铜铝连接管焊机
千古一香小吃车
千古一香烧烤小吃车
千古一香多功能小吃车
千古一香无烟烧烤小吃车
搬家公司
北京搬家公司
北京朝阳区搬家公司
通州区搬家公司
北京通州区搬家
海淀区搬家公司
北京市丰台搬家公司
冷缠防腐胶带
环氧煤沥青冷缠带
防腐漆涂料
防腐材料
聚丙烯增强纤维防腐胶带
环氧富锌底漆
耐高温漆涂料
环氧树脂漆
环氧煤沥青
玻璃鳞片涂料胶泥
机柜
IBM机柜
APC机柜
VEOR机柜
切换器
多功能小吃车
小吃车
好日子小吃车
好日子多功能小吃车
一品香小吃车
千古一香小吃车
上海租车
上海汽车租赁
上海租车网
平安保险北京
北京平安保险
石材翻新
石材结晶
石材养护
搬家公司
北京市搬家公司
朝阳区搬家公司
通州搬家公司
顺义搬家公司
亦庄搬家公司
玻璃喷砂机
喷砂机
打砂机
玻璃机械

11:16 PM  
Blogger sexy said...

A片,A片,成人網站,成人漫畫,色情,情色網,情色,AV,AV女優,成人影城,成人,色情A片,日本AV,免費成人影片,成人影片,SEX,免費A片,A片下載,免費A片下載,做愛,情色A片,色情影片,H漫,A漫,18成人

a片,色情影片,情色電影,a片,色情,情色網,情色,av,av女優,成人影城,成人,色情a片,日本av,免費成人影片,成人影片,情色a片,sex,免費a片,a片下載,免費a片下載

情趣用品,情趣用品,情趣,情趣,情趣用品,情趣用品,情趣,情趣,情趣用品,情趣用品,情趣,情趣

A片,A片,A片下載,做愛,成人電影,.18成人,日本A片,情色小說,情色電影,成人影城,自拍,情色論壇,成人論壇,情色貼圖,情色,免費A片,成人,成人網站,成人圖片,AV女優,成人光碟,色情,色情影片,免費A片下載,SEX,AV,色情網站,本土自拍,性愛,成人影片,情色文學,成人文章,成人圖片區,成人貼圖

情色,AV女優,UT聊天室,聊天室,A片,視訊聊天室


UT聊天室,視訊聊天室,辣妹視訊,視訊辣妹,情色視訊,視訊,080視訊聊天室,視訊交友90739,美女視訊,視訊美女,免費視訊聊天室,免費視訊聊天,免費視訊,視訊聊天室,視訊聊天,視訊交友網,視訊交友,情人視訊網,成人視訊,哈啦聊天室,UT聊天室,豆豆聊天室,
聊天室,聊天,色情聊天室,色情,尋夢園聊天室,聊天室尋夢園,080聊天室,080苗栗人聊天室,柔情聊天網,小高聊天室,上班族聊天室,080中部人聊天室,中部人聊天室,成人聊天室,成人

一夜情聊天室,一夜情,情色聊天室,情色,美女交友,交友,AIO交友愛情館,AIO,成人交友,愛情公寓,做愛影片,做愛,性愛,微風成人區,微風成人,嘟嘟成人網,成人影片,成人,成人貼圖,18成人,成人圖片區,成人圖片,成人影城,成人小說,成人文章,成人網站,成人論壇,情色貼圖,色情貼圖,色情A片,A片,色情小說,情色小說,情色文學,寄情築園小遊戲, 情色A片,色情影片,AV女優,AV,A漫,免費A片,A片下載

1:28 AM  
Anonymous Anonymous said...

I wandered into this discussion as I searched the internet for evidence of intracranial or retinal hemorrhaging in infants with Trisomy 18.
I would not have my niece of 19 mos, who is full T18, any other way. We are blessed she is here. No one can dissuade me with lame arguments of cost or 'quality of life'. Her life is full and happy. Her costs born by her family. She is a gift, as are all of our relationships.

12:54 AM  
Blogger Shareware zoo said...

Video-X-Ware.com the best video converter reviews, video converter ratings, dvd ripper ratings to help you deal with your multimedia problems.
Video Converter
Mac Video Converter
DVD Ripper
DVD Creator
DVD Copy
iPhone Ringtone Converter
iPad Video Converter
iPod Video Converter
Blu-ray Ripper

12:27 PM  
Anonymous Anonymous said...

best iphone data recovery

4:25 AM  

Post a Comment

<< Home